Posts Tagged ‘hiv poz’

National Youth HIV AIDS Awareness Day Youth Ambassador Thomas Davis Hosted an event “Positive Transformations” sponsored by REACH LA. The event brought together several performing artists and organizations from around Los Angeles to educate the community on HIV & AIDS. Focuses were on several subjects from HIV testing to life with HIV. The event was a great experience and a great start to what will hopefully be an annual event. Thank you Reach LA for sponsoring, Lula Washington Dance Theater for hosting, Advocates for youth, Tasheena Medina for Producing, and all the artists and organizations that participated! A huge thanks to Tigersnooze Productions for shooting and editing footage of the event!

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On the Daybreak this morning, Noel Cayasso-Smith and guest speaker Thomas Davis talk about CAF’s mission.

Mr. Davis’ presentation will focus on the stigma and discrimination with persons living with HIV/AIDS.

Mr. Cayasso-Smith says that there’s so much discrimination and that it has stopped people from getting tested.”It’s a community awareness thing with the stigma and awareness that we are trying to break,” he said.

Mr. Davis shares his story of when he was diagnosed with HIV in his early 20′s. He also said education is important and that not educating young people can cause more harm than good.

This is the third year that CAF has hosted this event.

Thomas shares the moment when he told his parents he was HIV+ and talks about what the year was like disclosing.

Sources: CDC Fact sheets (Understanding the continuum)

The Long Wait

Posted: November 12, 2014 by tdavisep in The Poz+ Life of Thomas
Tags: , , , ,

This piece choreographed by Thomas Davis is entitled “The Long Wait” and shows the struggle between two people to support each other after HIV has been introduced into their relationship. “I choose to use dance to communicate a lot of my feelings because I get too caught up in my words. I think dance is a powerful tool that can and should be used more. I hope to continue creating works to speak out about HIV and my experiences.” 

PEP and PrEP. One is used as an emergency medication (PEP) and the other as a daily pill (PrEP). These two drugs have been available to the public since the FDA approved them in 2012. When used correctly they can reduce the chances of you acquiring HIV by up to 96%.

In the past 2 years those of us that work in HIV have heard many debates about these two pills. Who should take them, how effective they are, and weather or not this is a step in the right direction of creating an AIDS free generation. The public, however has not been able to gather that much information on these two pills. Due to many differences in opinion and health providers not having a general knowledge of about PEP and PrEP, most people that wish to learn more about this new prevention method or be prescribed it, have had to search for clinics that specialize in this matter. But regardless on the differences of opinion on PEP and PrEP it is imperative that we get as much information out about these two pills so the consumers can better decide if this prevention method is right for them.

Most recently the New York Department of Health and Mental Hygiene released new materials to encourage people to find out more about PrEP and if it is something they should be using. They have a whole section on their website that give you all the information about PEP and PrEP: Whet they stand for, the difference between the two, how often you should be taking them, lists of providers and clinics, how effective it is WHEN THE PATIENT ADHERE’S TO THE MEDICATION, and information on those that provide them. After sharing this website with a few peers and co-workers, they walked away knowing a lot more about PEP and PrEP. I even learned a few new things. The website gave out the information in an easy and informative way.

They also had several new images that have been placed on posters, pamphlets, and post cards with various slogans. These images had a different reaction when I showed them to the same co-workers and peers. I then asked what they felt and why when seeing these images and if they would consider PrEP or PEP as a prevention method after seeing them. I got a wide range of opinions which I will share but first, take a look at these images and ask yourself the same question.

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find more info at http://www.nyc.gov/html/doh/html/living/prep-pep.shtml

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Ken Williams

There are a few things I want you to know about my positive experience. Whether you’ve worked in HIV for decades or are new to the epidemic, we all start somewhere. I’m a filmmaker and, ironically, my first introduction to the epidemic was through film. It was film where I started and film where I continue to this day.

Well before I became positive, my first in-depth look into the HIV epidemic was through the lens of a film called Philadelphia. For two hours I watched Tom Hanks’ character die on screen. What I took away from watching Philadelphia was that the typical HIV positive experience can be one of rejection and discrimination. It can be a stigmatized and demoralizing experience. Some people may think that your fate is considered your fault. As a person who has been living with HIV for four years, I now know this is not true.

The truth about my positive experience is that my life can often be seriously impacted by the social and physical implications of living with HIV. Almost every day, living with HIV means something different to me. Some days I feel hopeful because I take my medications and stay in care, while on other days, I feel shame because I am confronted head on by the stigma that is associated with living with HIV, leaving me feeling that I need to remain silent about my disease for fear of ridicule; the expectation that I must be dangerous because I am living with HIV. Having tested HIV positive just 4 years ago, I am still adjusting. Adjusting to how best to deal with stigma; how best to understand and manage what is happening in my body; how best to keep moving forward.

Much of this adjustment, for me, at least, is best handled by practicing optimism instead of fear. Optimism brought on by scientific advances; optimism brought on by my own personal growth and understanding of how to live a healthy life with HIV; and optimism that we are now talking about the real possibility of a generation free of HIV/AIDS. I learn daily and I listen to the outpouring of similar stories in my community and I take my meds and I live! I live despite the stigma. I live despite the fear. I share my story behind and in front of the camera and through these stories and connections I stay hopeful. I hope for an AIDS-free generation and a generation free of the stigma and fear and blame. I hope for a generation where I can continue to share my truths. My optimism drives me to want to see that generation.

What are you doing each day to bring us all to an AIDS-free generation?

– See more at: http://blog.aids.gov/2014/08/the-truth-about-my-positive-experience.html#sthash.1A8VLl08.dpuf

 

To donate and help me reach my fundraising goal please go to:https://www.crowdrise.com/TeamGrassrootsFULL/fundraiser/patrickkay

Over $18,000 raised last year let’s do even more!

The Grassroot Project serves to educate at-risk youth from Washington D.C. about HIV/AIDS awareness and prevention by utilizing Division I “student-athlete” role models. Founded in January 2009, The Grassroot Project is one of the first 501(c)(3) organizations to be designed, initiated, and managed completely by NCAA Division I varsity athletes encompassing athletes from Georgetown University, George Washington University, Howard University and University of Maryland. We are also unique in our approach to HIV/AIDS prevention—instead of using a traditional education program that is lecture-based and taught by teachers or health educators, we use games that teach lessons and athletes as our messengers.

Mission:

The mission of The Grassroot Project is to use sports to educate at-risk youth in the community about HIV/AIDS awareness and prevention. Our curriculum focuses on creating a fun, friendly and safe environment in which youth learn healthy life styles. The programs allow kids to share their feelings and beliefs, increase knowledge, and develop healthy attitudes and behaviors pertaining to HIV/AIDS through the use of interactive games and activities. By using the vehicle of sports to influence social change, student athletes use the curriculum to combat the high rate of HIV/AIDS in D.C

Check out http://www.grassrootsproject.org

So remember when I said I was going to involve more individuals and their stories on HIV, LGBTQ issues, or anything they want to sound off about?  Well National Black HIV AIDS Awareness Day is here and I am proud to present to you a blog by my friend and colleague Kemisha.  

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ImageBefore I became involved in the field of HIV/AIDS, I thought I knew all there is to know about it.  I knew it was something you could get through having sex or by IV drug use and it was something you wanted to avoid. I believed that if you did have it meant that you were being reckless with your body and did it to yourself. I always saw it as you made a mistake with your sexual activity and now you have to deal with it.  I was fortunate enough to go to schools, especially a high school where comprehensive sexual education was taught. I will say that even though I knew the do’s and don’ts of sex, that doesn’t mean that I always made the best decisions for myself. Yes, I knew that HIV/AIDS was something that was really out there but I also felt as if it was something that would never happen to me. I had that feeling of being invincible, a feeling that I think a lot of teenagers had at that time. When I think back to that time frame I will say that I did take a lot of risk. I wasn’t running around having sex with multiple partners but the person I did chose to have sex with, we never had the conversation about our sexual history. We never asked each other “have you ever been tested for HIV”, “when was your last STD screening”. It was more like we just believed that if there was something to be told that the person would say it.  Now that I look at it, that is a scary thought. By not choosing to ask those questions and trusting that person with my body, I was taking a chance with my body and my life every single time.

When I went to college, I started as an Athletic Training major and loved it. Two and half years into the program I realized that I no longer had the passion for it, I wanted to change my major but still be involved in Health. My professor recommended the Health Promotion program to me. It was there in that program I became very interested in HIV/AIDS. I began volunteering with the Wellness, Alcohol, and Violence Education Services (WAVES) office at George Mason University. The first program I helped with was the HIV/AIDS awareness week and from there I became hooked.  I took a class called Interventions on Populations at Risk. I chose to do and intervention for high school teenagers geared toward sexual education to help lower the high rates of teen pregnancy. After that course I had to take a course in Research Methods, I took the information I gathered in the previous class and took it a step further for this one. My final research paper for undergraduate degree was based on whether sexual education courses had an effect on the actual sexual activity of teenagers.

In order to complete undergrad I needed to complete 400hrs of a health related internship. The first internship was all set and ready to go and at the last minute the organization lost the funding to host and intern. I then came across Fredericksburg Area HIV/AIDS Support Services (FAHASS). They decided to take me on as an intern and it was a perfect fit because this was the field I definitely wanted to work in. While interning here I learned so much information that I didn’t know.  From understanding what exactly HIV does once it’s inside your body, to what the experience of having an HIV test done is, even an understanding and different out look on what its like for people living with HIV. I have learned about the services people that are living with HIV are eligible for that I had no clue about before interning here. My eyes were opened to so many things that I had no idea of; it showed me that there is always more to learn and not everything on the surface is the whole story. It allowed me to see that everyone’s story is different and you cant generalize people in the same category.

I was fortunate enough to receive a part time position with FAHASS and then eventually a full time position as a Prevention Specialist after my internship with them. I now do testing under the Care and Prevention of the United States grant (CAPUS). This specifically focuses on African Americans and Latinos. Now that I am out there in the field-testing, it is eye opening. In the rural community of Fredericksburg that I work in, I have seen how uneducated people are on the topic of HIV. Some people have no idea what HIV even stands for and it amazes me that this happens especially when there are so many resources for them to receive that information and begin to process and understand it. It feels good when I am able to give people information on HIV and see that they are interested in what I am saying. They are learning and becoming informed about it. I can only hope that they are passing on this new knowledge to others because it is something that needs to be shared with others.

Every day I learn something new being with this organization and it is only growing my knowledge base of HIV/AIDS. If I do not know something I have no problems asking questions because I believe that the more I know the better equipped I am to help educate people about HIV/AIDS and give them the tools to help make better decisions for themselves.  Eventually my ultimate goal is to help work on the different HIV/AIDS initiatives in the Caribbean. They are doing the best they can with what they have now and I commend than for all their efforts but I feel that more could be done. They really need to break into the communities and push outreach and testing and having those conversations but it is very hard to do that when there is still such high stigma associated with HIV and such strong stances against things such as, homosexuality. These walls need to be broken down in order to effectively provide the best outreach, prevention and care services to the people of these islands and their communities.

Kemisha is currently the prevention specialist at FAHASS, and just like many of us in prevention is continuing to learn more about the field every single day.  If you are interested in sharing your story with Pozlifeofpatrick.com email pozlifeofpatrick@gmail.com

New Year New Us!

So bringing in 2014 there will be many of our loved ones, friends, family, colleagues, and strangers who will be ready to begin their New Year Resolutions in hopes of completing them all by the end of the year.  Let’s be honest though, who ever completes every single New Years’ Resolutions?  This year I plan to do something different that I think will be successful and I invite you all to do the same.

I often tell people that my HIV diagnosis two years ago involved me going through a sort of metamorphosis.  During this process I evolved as a person, on very physical, emotional, and spiritual levels that were all for good.  I saw things more clearly and made a point to go forward with any dreams I had.  Can anyone relate?  As an 18 year old in high school I wanted to do it all.  From an officer in the United States Coast Guard, a professional tennis player, entertainer, author, a business owner, and married to the most perfect partner with the most phenomenal family.   I honestly wanted to have it all.  As time went on and my dream of not making it in the military and my tennis lacking success, I began not to day dream as much about those potentials.  Days that were once spent always day dreaming about my potential future became replaced with more “realistic ideas,” that were more fitting of survival in this world.  When I was diagnosed with HIV my eyes flashed before my eyes.  Like I talk about in one of my first videos I could have easily not have opted to test for HIV.  By not testing my plan was to remain in denial for the rest of my life.  Due to this life-changing event I made a choice to look at all of my dreams again and find ways to make them happen.

How is this relevant many of you may ask?  Well it is simple.  As Brian Litrell says, “Shoot for the moon. Even if you miss, you’ll land among the stars.”  I looked at ways I can give back to my community (advocating and speaking out about different things that negatively affect it).  Although there are policies that prevent me from serving in the military there is hope, and we should definitely continue to pressure Congress and the Department of Defense in allowing individuals living with HIV to serve their country.  I also started playing a tennis league and also starting to look for opportunities like using YouTube for my video blogging, singing, and other projects like the MTV documentary to entertain individuals from around the world.  In 2014 I will also be focusing time on my book and creating a line of products I hope you all will enjoy.

I think it is important that we all reach out for our dreams and wants, no matter what they are.  Illnesses or even failure should not keep us from fighting what we want.  If we pray on our dreams, continue to work on them, and have affirmations then they will happen.  Affirmations are very important and Dr. Harra explains this very well in her Huffington Post Article.    Even if you are completing them at 50% that is better than never thinking you can.

  My three challenges for you all this year is very simple:

  1. 1.    Be there for others because there is always room to do more in this department.  Even by giving a friend a hug, a text during the day saying you are thinking of them, a nice thank you message to your boss (even if they are incompetent), and even saying congratulations or liking a comment of a rival are ways you can be there for others.  Volunteering your time or even donating to an AIDS Service Organization (ASO) or Community Based Organization (CBO) can be a way to give back.  A database of such organizations can be found here.
  2. 2.    Patching up issues with adversaries.  This is something that is very hard for me.  This will be tough for me because I may forget about the past but never forget, which can affect my actions.  We should learn how to forgive people for what they do and say.  No one is perfect so apologies are definitely fitting.  Our egos can be huge barriers at times where reconciliation can take place.
  3. 3.    Personal Growth can take place is so many different forms.  This can be traveling more, taking more vacations, learning a new skill, making new friends, soul searching, and even getting to a place where you can be more open about your HIV status. Personal growth can also include things professionally.  There is always room for self-improvement and we should always look at ways to better ourselves.

These three simple things can reach literally every goal people make each year.  I also think that to be able to accomplish these goals we have to have more realistic expectations.  A perfect example is how in the first of the year gyms see an increase of activity that soon tapers off by February/March.  By easing into to being physically active and going to the gym on a more consistent basis you start of small with goals like going at least 3 times a week for an hour or so, and then increasing it weekly with an additional day until you are going at a frequency that balances out in your everyday life.  Writing my book has seriously resulted in nothing ever happening past a few sentences a quarter; however, now I will dedicate a few minutes out of the day to brainstorm and write a few things.  The following month I will increase my writing to something more consistent and realistic to completing by the end of the year.  Fixing interpersonal issues can take place with exes, ex-friends, lack of a father-son relationship, etc.  They may not be enemies but I think that working on improving communication and ending conflicts helps to relieve stress and drama in one’s life.

In 2014 will you work on reaching the moon by having reasonable expectations and progress that will take place over time? Or will you rush into something head on, burn out, and give up halfway through?  Again HIV does not mean we cannot accomplish our dreams, so we must make sure that we don’t give up if we hit a brick wall.  Breaking through that wall and overcoming our fears and anxieties about such possibilities will result in us having success on some level.


IMG_0766  In this New Year and beyond it is important to simply do what is best for you.  Also, keeping in mind that this also includes doing what is needed to manage your HIV and all other outside sources that may influence it.  If anyone has issues with you or the healthier choices you are making to better yourself, then be the fabulous person you are and keep on strutting into the future!

ImageSo I know many of you have wondered where I’ve been.  Well, after a year phenomenal year of amazing events and opportunities that has opened up for PozLifeofPatrick and me.  These opportunities would not have happened without others seeing my potential and giving me a chance.

On December 18, 2012 I created the blog to chronicle my life living with HIV and to provide opportunities for others to lend their voices.  Being open with my status allows me to help educate others, break down stigma, and break the silence that so many of my positive brothers and sisters live in. Many living with HIV lay in silence because of the fear of stigma and discrimination based off of their status.  I have worked very hard and seen success in my mission to decrease stigma and increase understanding around this virus that affects so many.  On the other end of the very sharp double-edged sword I continue to see a lack of understanding and openness to HIV, even more prevalent in my dating life.   Call me strange or too young for love, but throughout this year I helplessly made myself vulnerable in an effort to try to find a significant person to be in my life.  As I approach a 2014 I can report and say that at this moment in time I am very much single; however, my priorities have changed.

Image  By being able to start my new career in the non-profit sector is where everything started.  I was able to interact with many individuals through community HIV outreach, education, and testing.  Also, working with NMAC with their Youth Initiative to End HIV/AIDS in America, and its HIV-positive Leadership Working Group of their National HIV Health Literacy and Wellness Initiative.  This year I was also given the opportunity featured alongside another fabulous HIV advocate, Guy Anthony on Blackmenrise.org where we talk about in more detail about our lives.  Through NMAC’s Youth Initiative I was able to travel to New Orleans, Louisiana for USCA 2013.   There I learned more about HIV and those who are affected by it, networked with so many different individuals and organizations, moderated a discussion on storytelling and HIV, made new allies/friends, and overall took away an amazing invaluable and indescribable experience.

Image            Throughout this year I was also able to be brought on as the Testing Coordinator to The Fredericksburg Area HIV/AIDS Support Services (FAHASS) where with the help of a dedicated prevention team helped to test, diagnose, and link more individuals to care then we ever have.  With being given a special grant called CAPUS, we will be able to reach more affected populations to educate, test, and link any individual who is HIV-positive into care.

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Also, I was featured alongside other youth in an MTV Staying Alive Documentary, “My Sex Life and Everyone Else’s.”  This

documentary may not have been rainbows and butterflies for me, but it gives me a stage to continue the dialogue of what it is like to live with HIV and deal with the struggle to get out of the stages of grief and guilt.  Looking back now I can honestly say that I am light years away from that time period in my life.

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           Other highlights of my year was running The Marine Corps Marathon and Anthem Richmond Marathon back-to-back, and helping to raise almost $20,000 for The Grassroots Project’s Team Grassroots.  Also, working with ACCESS AIDS in the Hampton Roads region to help further the discussion that needed to take place to people of color.

            There are many things that I can rant on about but I already feel like folks may think that I am being narcissistic; however, this is more about showing people that if I can do this in one year then why can’t you, a community, or a nation.  I have said it before but I am serious about making pozlifeofpatrick more about others in 2014.  I started the process of having my live show, PozLifeLive, where I bring on others to share their stories, experiences, and work for the world.  Also, by opening up my blog up for others to share it gives the opportunity to have an even greater experience when you visit my website or channel. Image