Posts Tagged ‘adap advocacy association’

Adrian C

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This year has been a big one for me. Firstly, in late march I learned my status as a positive person. A few months after, the caseworker that did my intake told me about the NMAC Youth Initiative. I applied and was awarded a scholarship to attend the conference in October. It was an amazing experience to be surrounded by like-minded, young, professionals and individuals. While at the conference I had the pleasure of meeting Thomas, Patrick, and Benjamin. It was an honor to be brought on board to ThePozLife. After I returned home I had many ideas and seeds to plant for my community. In late October I met with the executive director of the Valley AIDS Council, James Judkins, and a caseworker to discuss some ideas I had for our area. One of those being to launch a support group targeted to but not exclusively for HIV positive people in the Rio Grande Valley: VPOS, Valley Peer Outreach and Support. VPOS is one of my projects for 2015 and I am eager to get that up and running strong for the New Year. I created a Grindr and Jack’D profile to conduct my own outreach and to answer any questions my community might have regarding HIV and resources in the Valley. I started these profiles early November and have received a positive, no pun intended response from the men in my area that have approached me. Through these outlets, I’ve been able to reference some of these men to testing centers and provide basic and detailed knowledge of the virus. On World AIDS Day, December first, I had the pleasure of attending our local AIDS Memorial Quilt presentation at the University of Texas Pan American and met a few more members of the Valley AIDS Council. Who presented me with a job opportunity as a Risk Reduction Specialist where I would be conducting HIV and STI screenings, providing counseling to members of the community that reach out to us, and conducting outreach activities. I’ve applied for the position and have made it to the final round of interviewing; I am anticipating a decision sometime early January. In looking forward to 2015 I have also applied for a scholarship to attend AIDS Watch in DC and am waiting for a response. You can learn more about AIDS Watch here: http://www.aidsunited.org/AIDSWatch-2015/Scholarship-Information.aspx
2014 has been such a roller coaster, sometimes difficult, but I’m happy to say that I not only survived, but thrived! I’m very excited to see what I can accomplish in 2015. Especially now with all that I’ve started and alongside the boys at ThePozLife.

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Patrick participating in youth-led session at 2014 USCA

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Reviewing the CDC’s HIV surveillance report for Texas in 2013.

USCA Youth Lounge

Hanging out in the Youth Lounge at 2014 USCA

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AIDS Memorial Quilt at The University of Texas Pan American on World AIDS Day.


Thomas Davis

This year has been HUGE for me! I am truly grateful for every experience I’ve had. I started the year releasing my video of me “coming out” as HIV positive. I wasn’t sure what it would look like to be openly living with HIV but I knew it was something I wanted to do. After sharing my video I attended YGBLI summit in Atlanta and connected with Patrick Ingram and Adrian Hobson. I then got more involved with Aids Project Los Angeles and their young men’s group Empowerment. As the year progressed Empowerment changed to R3VNG, which stands for Reshaping 3 letters for the Voices of the Now Generation. In addition to changing the name APLA also provided funding for R3VNG to create a talk show focused around HIV education and other issues that surround gay men of color. Towards the end of the year I attended USCA in San Diego as a Youth Ambassador, which was an AMAZING experience! At USCA The POZ Life team expanded to get a wider range of representation. After returning I worked on a project with Reach LA where I choreographed a dance that told a story about the struggle between two people to deal with HIV being introduced into their relationship. It’s the first piece in what I hope will be a series of creations centered on living with HIV.  I was also picked by The Human Rights Campaign as a youth ambassador and will be involved with them until 2016. This past December I spoke at an event for World Aids Day at the New Testament Church here in L.A. For the past few weeks I’ve been prepping to speak at Time To Thrive in Oregon at the start of 2015. Most recently I was featured in Healthline’s Portrait of HIV. Outside of my involvement with HIV I’ve spent the last year teaching at Lula Washington Dance Theater and training/touring with the professional company in preparation for their 35th anniversary in 2015. This past month I also started touring with a company called The Lucent Dossier Experience and did a performance in Las Vegas.

http://www.healthline.com/health/hiv-aids/portraits

https://www.youtube.com/watch?v=Zm6f1PhG5eo&list=UUionyFnRXZVHQwv1gege_PQ

http://www.hrc.org/blog/entry/hrc-foundation-introduces-youth-ambassadors

http://www.hrc.org/blog/entry/more-than-numbers-adoption-foster-care-and-the-lgbt-community

http://www.bawn.tv/truthbtold/

Thomas and Patrick

Patrick and I at USCA

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The boys of R3VNG

Thomas spirits Thomas


Benjamin Di’Costa: 

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One year ago this month I made a resolution that 2014 I would go “All Out”. Since then almost everything in my life has changed.

A year ago I was okay with the normal daily routine in the organization I worked for. Now everyday when I wake up for work I find myself all over again and pursue my passion every day. A year ago I was content with my life. Now I’m living a meaningful life.   A year ago I wasn’t speaking out, let alone blogging. Now I’m proud to be apart of ThePozLife, as well as other endeavors.  A year ago I had few people reading my words (other than some vapid work emails). Now I have over 100,000 active followers, and my work have been read by over half-a-million people in 151 countries this year.

A year ago no one was interested in following me on Twitter or Facebook or Google+. Now I have over 10,000+ people who interact with me via those platforms.

A year ago my inspirations were Angelina Jolie, Laverne Cox, Pedro Zamora, Janet Mock, and others like them. And I’m still inspired by them. A year later I’ve been in meetings guys, been featured on international websites, and established organizational relationships with them and dozens of similar people who have helped shaped the lives of those living with HIV in meaningful way.

A year ago I hadn’t presented anything. Now I’ve presented 20 presentations: 5 abstracts, Facilitated 2 nationwide panel discussions, and featured on 3 magazine covers.

A year ago I had a spreadsheets full of goals, and I would beat myself up when I didn’t achieve those goals. Now I live with one goal at a time.

A year ago we strived to make everything perfect. Now we embrace the imperfection of my daily life.

A year ago I was a dorky guy living in South Florida. Now I’m given the opportunity to travel the country and meet young advocates like myself and collaborate with the most amazing people I’ve ever met. I’ve given away hundreds of free hugs on this tour so far.

A year ago there was a considerable amount of discontent in our lives. Now I’m happy, and when we I look in the rearview mirror everything is different.

A REASON FOR THESE STATS?

I’m not trying to impress you with my “accomplishments.” Rather, I want to impress upon you the power of a year. As human beings, we often overestimate what we can accomplish in a short period of time (e.g., six-pack abs in two weeks), but we drastically underestimate what we can accomplish in a year or two.

Most of the above mentioned “accomplishments” weren’t goals I developed at the beginning of the year. They just happened, organically, as we worked hard to add value to other people’s lives. Thus, I’ve discovered that when we add value to other people’s lives, everything else tends to fall into place. The big life changes don’t happen overnight. Give yourself some time. Put in a lot of effort and keep at it. You’ll be surprised with what can happen in a year.


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Patrick Ingram and Ryane Hill at the 4th Annual ADAP Leadership Awards

Patrick

2014 has been a year of progression, beauty, success, and identity. This year started with trying to discover a way of growing PozLifeofPatrick to be faithful to my goals from my resolutions for 2014. After the Young Black Gay Men’s Leadership Initiative’s 2014 Policy and Advocacy Summit I discovered how that would look. PozLifeofPatrick took the necessary steps and evolved to ThePoz+Life.

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“Sexy, smart and HIV+” exhibition in Zagreb, Croatia.

By bringing on the unique personalities and positive attributes of others living and affected by HIV we are now able to reach places we have not been before. At this year’s USCA we asked the tough questions, networked, educated people on what we do, and really worked alongside other young people to have our needs and issues addressed. At the ViiV Community Summit in Miami, FL we learned about the great community work ViiV Healthcare does, new information on advancements in the work to end the HIV epidemic, and the work that is taking place in our communities. We were apart of their 1st Youth Summit were we refined our leadership skills, fellowshipped with other great young leaders and influencers, and gained new collaborations which will start in 2015.

In 2015 we look forward to working alongside great organizations, projects and individuals who are ready to see the end of the HIV epidemic. Personally, I am very excited to have been able to represent the many Young Black Gay Men living with HIV through a variety many projects. They took the form of filming a commercial, interviews, magazine features, Op-Ed pieces, being apart of “Black Voices,” and even being featured in a photo exhibition aboard. This year has been full of challenges as I have continued to battle depression and PTSD, working full-time, being a full-time student, having people relying on me as a primary source of support, managing the newly formed ThePozLife, and trying to live my own personal life. Although there were many challenges trying to balance all of these responsibilities the rewards have been fruitful and the fact that I can touch and connect with people who are both HIV-Positive and HIV-Negative continues to speaks volumes.

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In 2015 I have a few request.

  • Let’s focus on not always bragging about what we do but instead give your platform to someone else for five minutes
  • Seek self-improvement and self-development
  • Give back through volunteering and donating to causes specific to one’s you are affected by
  • Stop being selfish and collaborate with others, also support social justice movements that realistically impact us all
  • Share the work of ThePozLife and always keep us in your prayers and thoughts

The most important piece of this all is to understand that regardless of how you feel or think that your voice and lived experiences does matter!

 

See you at NAESM in January!

Positivity is everything

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This year was the first year that I attended the ADAP Advocacy Association’s (aaa+) annual conference. I went there knowing that some states have AIDS Drug Assistance Programs (ADAP) that are under some questionable measures and are causing many who need meds to be put on waiting lists and even some who have been experiencing trouble accessing care. My purpose in attending was to learn ways in which to support as an ally and advocate for family members, friends, and those that I work with in regards to ADAPs and the possible changes to come with the implementation of the Affordable Care Act (ACA) and Medicaid expansion. Little did I know that attending this conference would touch me way beyond the spectrum of my current position as linkage to care coordinator, and allow me to connect with true champions in the fight against AIDS and become more empowered than ever before.

Day 1: Right from the start of the first plenary session I was introduced to Bob Bowers, One Tough Pirate, AIDS activist, educator and survivor. Living in the small city that I am from, I had never met such a warrior, so full of ambition, motivation, and courage to stand up speak on his combat for justice for himself and those living with HIV/AIDS. He absolutely blew me away. He was so real and so blunt that I almost wasn’t ready, but I knew that if he could get on stage and be so passionate about this fight, that I had to become more than just a health department worker; I had to become a rebel against those opposed to true nurturance, the true belief that diversity of any kind is indispensible to a truly healthy society.  

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 But that wasn’t all! The rest of the day consisted of breakout sessions on the topics of Africa’s use of technology to provide continuity of care – the use of an electronic health record system where clients utilized a simple health card to take to appointments that kept track of all their dates of visits, lab results, etc.; and HIV medication self-management – how individuals in one community were able to create their own intrinsic/holistic ideals of empowerment to deal with their diagnosis and manage care, all from many different walks of life.   The day ended with the wonderful launching of the ADAP directory…

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The fabulous invention of aaa+, a resource page full of word lists and links that handily locate AIDS Drugs Assistance Program information for all US states and territories! This is a way for those newly diagnosed or currently living with HIV/AIDS, those who are moving, plan on moving to another state, or just need to locate info within their own state, to review all the ADAP information and find ways of locating healthcare coverage and other financial sources; to improve the quality and accessibility of HIV/AIDS healthcare and support service organizations; and provide grant information. The best part is that the creators of the site are connected to the states info in a way that they are able to keep the information listed online as up to date as possible. So…as soon as something changes, their notified and updates are made!! How awesome is that?!?!? This is a way to keep people connected and even aware of changes that may need to be made or added in their areas. That’s true advocacy at work and making sure that we’re starting to push toward creating consistency across the US and its territories!

Day 2: Lots of information provided this day! A rep from the National Alliance of State and Territorial AIDS Directors (NASTAD), “the voice of the states”, provided and excellent presentation on AIDS Drug Assistance Programs. As of February of 2014, only one state has a waiting list consisting of 35 people and other states that had previous lists are now on cost containment measures. Meaning they have put a plan in place to attempt to avoid tight budgets and not being able to provide everyone with the care and medication that they need.

More good news concerning this program is that as of 2013, the ADAP budget (consisting of Federal, state, and rebate dollars), exceeded a budget of 2 billion dollars for the first time! This means funding for the program is steadily increasing to where care and meds can be provided to those who need it within the ADAP income eligibility range of the federal poverty level.  We as advocates just need to be sure that within our own states, the money is actually reaching the people!

The day continued on with powerful breakouts from organizations such as Positive Champions Speakers Bureau (http://www.positivechampions.org), a group of HIV positive people who share their first hand experiences and the effects that HIV has on communities. They work to educate their community on the issues of living with HIV & AIDS and work to fight against stigma. This breakout allowed the speakers themselves to not only share, but also engaged the participants to share and connect as well.

I could go on and on but because there was so much information shared that I believe was helpful to both PLWHA and allies….but I don’t want to take up too much of your time lol. So I’m listing some websites that I believe are truly beneficial and that you should definitely checkout:

www.speakup.org – enables youth to make positive life choices and parents and educators to support them as they navigate the journey to become happy, confident adults (great resource)

www.needymeds.org – a national non-profit organization maintained website of free information on programs that help people who can’t afford medications and healthcare costs

http://www.panfoundation.org/ – offers assistance and hope to people with chronic or life-threatening illnesses such as HIV/AIDS in which costs is the reason for limited access to advanced medical treatments

http://www.lambdalegal.org/ – founded in 1973 as the nation’s first legal organization dedicated to achieving full equality for lesbian and gay people

Later that night, I met this fabulous guy…

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a fighter, an advocate, a trailblazer, a survivor…the true definition to me, of a believer. He is a believer of life, a believer of living, and believer of the fight being bigger than just himself. I was honored to have sat with him at the 4th Annual ADAP Leadership Awards dinner as he accepted the award for Social Media Campaign of the Year for himself and his co-creators of the The Poz Life. P.S. – you guys are doing amazing things!

Day 3: The conference ended with a town hall meeting in which all attendees met to discuss issues and set plans to go home with to continue working, begin new initiatives, and move forward in empowering others to join in this movement towards social/civil justice and equal rights.  

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So…as I left DC and headed back to my little old city, I thought about how if associations such as aaa+ remain in the fight to ensure care and funding is available, accessible, and awarded to those in need, programs such as ADAP have no choice but to remain. But we also have to become part of the battle and we can’t be afraid to speak up. If we remain in the background, watching as others struggle for our rights and necessities, then what are we doing? Why aren’t we helping? Are we really a part of the fight? Are we really standing up for what we believe in? If not, I think we have to then start asking, what do we believe in? What is our purpose? I think if we follow the quote made by Dr. Martin Luther King, Jr. and read by the keynote speaker of the awards dinner, John D. Kemp, we can only go up from here…

“If you can’t fly then run, if you can’t run then walk, if you can’t walk then crawl, but whatever you do you have to keep moving forward.”

By moving forward, we work towards growing our communities from repulsion, to tolerance, to acceptance, to support, to admiration, to appreciation, to true nurturance for all – believing that diversity is indispensible to a truly healthy society. And in order for our society to truly be healthy, we have to all have all be treated as equal and have consistency in access to medical care, medicine and other resources that keep us living in this fight TOGETHER!

On another note…I LOVE DC AT NITE!!!

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Rimage-2yane Hill, from Akron, Ohio is a  University of Cincinnati graduate with a Bachelors of Science in Health Education and Promotion with a Community Health focus. Currently she is working towards her Masters of Public Health at the University of Akron while working at Summit County Public Health with the HIV/STD Education and Prevention Program.  Ryane‘s dedication is working to educate those in underserved populations and communities on risk behaviors, prevention, treatment, and ways to access care while empowering them to self advocate for their health and future.  

IMG_4992I attended the 4th Annual ADAP Leadership Awards in Wasington D.C., and accepted the award for Social Media Campaign of the Year.  It was truly an honor  being in the room with individuals from all over who do fantastic work.  The experience motivated me to keep on with the work and know that it is meaningful.  Thank you so much again ADAP Advocacy Association Staff, Board Members, and Attendees for the experience!  The awards was in conjunction with the associations 7th Annual Conference.

IMG_4993We at The Poz+ Life love your support and feedback and continue to be motivated to continue the empowerment of others who are affected by HIV and other inequalities.  This is definitely just the beginning.  Thank you!

 

-Patrick Ingram (The Poz+ Life)Screen Shot 2014-08-11 at 12.51.16 PM

The Poz+ Life is so pleased and excited about the followed award.  This shows that collaboration and teamwork can get the job done.  I am so proud of my fellow members Thomas and Adrian for their hard work in such a short time. This includes our guest contributors and hundreds of individuals who shared our materials! Thank you so much supporters, roots, family, and friends!

-Patrick Ingram


 

Screen Shot 2014-07-20 at 5.58.31 PMWASHINGTON, D.C. (July 7, 2014) – The ADAP Advocacy Association, also known as aaa+, today announced the recipients for its 2014 Annual ADAP Leadership Awards, which recognizes individual, community, government, media and corporate leaders who are working to improve access to care and treatment under the AIDS Drug Assistance Programs. The eight leadership awards will be presented during the 4th Annual ADAP Leadership Awards Dinner being held on Monday, August 4th at 7:00 pm in Washington, DC. The dinner will be held in conjunction with its 7th Annual Conference, being held at the Westin Washington DC City Center on August 3-5, 2014.
The 2013-2014 award recipients include:

• ADAP Champion of the Year (individual): Kathie Hiers, AIDS Alabama
• ADAP Emerging Leader of the Year (individual): Wanda Brendle-Moss
• ADAP Corporate Partner of the Year: Ramsell Corporation
• ADAP Community Organization of the Year: Community Education Group
• ADAP Lawmaker of the Year: The Honorable Henry Waxman, M.C. (D-Calif)
• ADAP Social Media Campaign of the Year: The Poz Life by Patrick Ingram
• ADAP Grassroots Campaign of the Year: Moral Mondays
• ADAP Media Story of the Year: Continuing HIV Care for Formerly Incarcerated U.S. Citizens,
by Candace Y.A. Montague, TheBodyDotCom

“With so much uncertainty surrounding the future of the AIDS Drug Assistance Program, it is only fitting to recognize a group of honorees who have worked so tirelessly to improve access to care for people living with HIV/AIDS,” said Brandon M. Macsata, CEO of the ADAP Advocacy Association about the 2013-2014 award recipients. “It is reassuring to know that these individuals will be continuing their advocacy to promote and protect programs, such as ADAP. Our award recognition is a simple gesture of our appreciation!”
To learn more about the ADAP Advocacy Association, its Annual ADAP Leadership Awards, or its Annual Conference, or the, please contact Brandon M. Macsata at info@adapadvocacyassociation.org.
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Check out the original post here!

 

[The ADAP Advocacy Association (aaa+® ) is a national 501(c)(3) nonprofit organization incorporated in the District of Columbia to promote and enhance the AIDS Drug Assistance Programs (ADAPs) and improve access to care for persons living with HIV/AIDS. aaa+® works with advocates, community, health care, government, patients, pharmaceutical companies and other stakeholders to assure that access to services recognize and afford persons living with HIV/AIDS to enjoy a healthy life.]